debra.org Profile

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Title Debra of America - Dystrophic Epidermolysis Bullosa Research Association
description The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa, EB - 'the worst disease you've never heard of.' Founded 1980 and headquartered in New York City.
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The debra Care Conference Register now for the 2018 debra Care Conference! Join us for the 2018 DCC, which will be held July 22-25, 2018 (with hotel stays until the 26th) at the Sheraton Grand at Wild Horse Pass: A Phoenix Family Resort in Chandler, AZ. Click here to find out more!   Join TEAM DEBRA in Events Across the Nation in 2018 TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.   19th debra of America Benefit Thank you to our sponsors, donors, and volunteers who supported the 19th Annual debra of America Benefit, which was held on October 26 at Guastavino’s in New York City. Click here for more details on this evening of honors and celebrations.  
The debra Care Conference
Join TEAM DEBRA in Events Across the Nation in 2018
19th debra of America Benefit
Announcing the first-ever Adult-Only EB and Skin Cancer Clinic Philadelphia, PA
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